The following is Mike Farmer's "Ask" speech from the 2013 luncheon.
My name is Mike Farmer. I have been associated with St. Gerard House for two and a
half years now and have been a member of the board for the past two years. I also act as the Treasurer for this
organization.
I first came in contact with St. Gerard House after
Caroline Long gave a presentation about this new organization at mass one
Sunday. I simply wanted to tell
her that Ernie Els, the professional golfer, had a Foundation for autism and
that it might be a good place to request a grant. Now, two and half years later I am blessed
to be fully engaged in this exceptional charity.
For a moment, consider that you are in your 30’s, married
a few years with perhaps a growing family. You might have one or two children already. And then one fateful day your family
doctor gives you the diagnosis that your youngest child is on the autism
spectrum. Immediately you have a
big question mark on your face and you wonder “what do I do now?” and “where do
I go to get answers”. In Western
North Carolina, St. Gerard House is one of the primary resources for you to get
those answers. So you come and you
like what you see and hear.
There is hope after all. You find that you are talking to people who clearly
understand your concerns and have a plan to address them. But you had no idea it was so expensive. You learn that the Grotto School uses
Applied Behavior Analysis or ABA, which is an evidence based therapy. ABA, however, requires a one to one
relationship between the teacher and the child to be most effective. You like the idea but where will you
get the money to pay for the school tuition? How will you be able to afford it? And then you realize, you will do anything possible to give
your child every chance to live a normal life.
We in Henderson County are blessed with so many fine
charitable organizations---all doing great work. We are also blessed with a caring community who gives to
support these fine organizations.
It sometimes makes it very difficult to decide where to put your dollars
and where they will do the most good.
You have many options to do great work.
Families of children with autism do not have that many
options. Treatment
is expensive and there are no plans currently in the State of North Carolina
that provide for coverage under private or government insurance for evidence
based therapy. The few plans that
do exist only cover autism treatment that do not have the proven results that
we have seen achieved with ABA. I
believe we are one of the few charities that strictly monitors our actual
results in such a way that we can actually show a child’s response to treatment
and progress over a period of time.
This is why the St. Gerard House Board is committed to
providing the best resources and services, and at the same time charging a
nominal fee so that young families can get the much needed help for their
child.
Our initial goals were to first raise community awareness
about autism; and secondly, to find financial support for autism so that these
families and their children would have a pathway to mainstreaming into
society. We believe we have
accomplished the first goal of raising community awareness. The second goal continues to be
elusive.
Currently it costs about $40,000 to $45,000 a year for one
child to receive the daily Applied Behavior Analysis therapy that is practiced
at St Gerard House. Our base
tuition is $30,000 but even that is an amount few young families can
afford. To cover any deficit and
to provide administrative and other services we have fund raisers like this one
at least three times each year. We
have even made arrangements for some families to come on a part-time basis so
their child and the family can receive some measure of help.
It is only through the generosity of our community that
St. Gerard House is able to continue to operate. If you decide to be part of that generous community here is
what you will get:
The most dedicated teachers that I have ever known. They continue to amaze me with their
patience and love of these children.
And daily they work miracles.
A support staff, including a non-paid Executive Director,
who works tirelessly to make the mission of St. Gerard House a reality.
You may also have the joy of seeing the smiles and tears
of the parents of these children as they see the fog of autism give way to the
uniqueness of their child.
Lastly, with your help, a non-verbal child, who enters the
Grotto school, will someday look up and say to his parents for the first time “I
love you mom and dad”.
There is a song we occasionally sing at our church. It always tugs at my heart and soul
when I hear it and I wonder if I am doing enough to help others. The song starts with God asking how he
will use his almighty powers to heal the lives of his people. The words go like this:
I,
who made the stars of night,
I will make their darkness bright.
Who will bear my light to them?
Whom shall I send?
I will make their darkness bright.
Who will bear my light to them?
Whom shall I send?
And we respond:
Here
I am, Lord. Is it I, Lord?
I have heard you calling in the night.
I will go, Lord, if you lead me.
I will hold your people in my heart.
I have heard you calling in the night.
I will go, Lord, if you lead me.
I will hold your people in my heart.
Our patron, Saint Gerard,
heard this call and dedicated his life to bearing God’s light to people in
need. Born in the 18th Century he spent his life helping the
needy and the poor, being poor himself and having an understanding of the sorrows
of the needy.
He often gave away his earnings and his own food to the poor
and those that came to him never left empty-handed. Sometimes,
how the food or money came to be there was known only to God and to St. Gerard.
St. Gerard House has been touched many times by our patron
saint. When we have looked ahead
and wondered how we will fund the future, we have asked for his help.
As a logical finance guy, I can’t explain how it happens,
but St. Gerard has delivered in our times of need.
Finally, the poet Kahlil Gibran, who authored the Prophet,
wrote a wonderful poem titled “Your children are not your children”. In it he writes:
“Your children are not your children.
They are the sons and daughters of Life’s longing for
itself.
They come through you, but not from you.
You may give them your love, but not your thoughts.
For they have their own thoughts.
Their souls dwell in the house of tomorrow, which you cannot
visit.
You are the bows from which your children, as the arrows are
sent forth.
Let your bending in the archer’s hand be for gladness”.
This beautiful poem has always touched me as a parent. When I first read it, I could not quite
see how it applied. But through
the years of raising our two children it became clearer.
I might disagree with the poet on one account. I believe that children with autism
belong to all of us. We all
are responsible to give them the opportunity of life that we have enjoyed. We are the archers and with your gift
today you will bend the bow in gladness so that these children will reach their
greatest potential.
This summer I intend to ask St. Gerard to accept a rather
unusual prayer from me. I’m riding
my bike 4,285 miles across the US to raise awareness for autism and money for
St. Gerard House and two other charities.
Every pedal stroke will be a prayer request to St. Gerard that the work
of his House and the Grotto School will continue to be successful.
Located at your table is a donor sheet that your table
captain will now pass out. If you
wish to donate financially or to volunteer to help us at St. Gerard House,
please fill out this form and return it to your table captain. If you have questions about the form,
consult your table captain.
And speaking of St. Gerard, you will find a blessed medal of
our patron at your table. It is
yours as our gift for your concern and generosity.
If your heart has been touched by what you have heard today,
and if you share that sense of responsibility for a child with autism, please
answer that call with “Here I am, Lord”.
Thank you for your consideration and your attention. God bless our children.
No comments:
Post a Comment